Thursday, July 31, 2008

Call Me - Anytime

Post-stroke dementia, which is what Mom apparently has, may or may not be helped by the surgery she is going to have on the 12th and again two weeks later. Add to that the fact that she can only see out of the right half of both of her eyes, and you can see she has to have an intensely weird focus on the world right now.

Because of this she's had a hard time concentrating on anything as simple as watching television. She can listen to it if someone else turns the channel for her, but can't seem to really SEE it otherwise. It's the same with dialing a number on the phone. She has a very hard time putting the shape of the number together with the shape of the number written on the phone, and then has a hard time following through to actually dial the number she punches in.

Knowing this, I found what I hope will be a solution for her.



Basically, it's a system where she can look at photos of the person she wants to talk to, lift the receiver of the phone, punch the button next to the picture of the person, and it will dial the number for her. The box holds 24 photos in all. That way she won't have to remember numbers and what they look like in order to talk to someone, and it might give her a new way to pass the time during the day.

We're also considering getting one of these for my 92-year-old mother-in-law. It's hard for her to see to read anymore, but she can make out faces on photos. This could keep her from dialing the wrong person all the time when she wants to talk with someone.

In case you would be interested in one of these for a family member, the website is:

http://www.photodialing.com/buynow.html
As far as I'm concerned, it's well worth the cost.

My next conquest will be a cell phone she can use that doesn't have to flip open...

Tuesday, July 29, 2008

What A Way To Celebrate

Another day, another transfusion.

Mom's hemoglobin went down to 8.3 yesterday, so rather than risk it going down further before treating it, her doctor ordered a transfusion of two pints of whole blood for her today.

Today was her 75th birthday.

The rehab center doesn't handle transfusions, so transportation was arranged for Mom to get to the hospital as an outpatient. Unfortunately, they sent an ex-NASCAR driver to be her chauffeur, and she ended up getting carsick all over herself before she got to the hospital. Sis met her there, and the nurses got her cleaned up and into bed. They started her IV, then waited for the blood to appear.

And waited.

And waited.

Two hours later they finally started the transfusion. By then Mom had developed a rip-roaring case of diarrhea, and they spent the remainder of the day cleaning up after her every twenty minutes. I don't know if she picked up some kind of bug or if the bleeding she's been experiencing triggered it, but she's had a really rough go of it lately in the digestive tract. The nurses, according to Sis, were wonderful about it all day long. Poor Mom, however, was still sore from the last bout with All The Laxatives.

I got there as soon as I could after work. Mom hadn't had anything to eat all day because of the queasy stomach. Sis was able to get some pop down her, and we managed to get her to eat half a graham cracker. By 8 p.m. when they let her go, we were all exhausted. We got her back to the rehab center without the help of the ex-NASCAR driver, and got her into bed around 9 p.m.

It was a very. long. day.

On the 7th we have to bring her back to the hospital for pre-surgery testing, then we have to have her back again on the 12th for her first carotid surgery. Sis and I are getting pretty adept at this transportation thing. We're thinking of painting Mom's car bright yellow and putting our rates on the side to make up for the gas we use going back and forth to the hospital and rehab center.

With any luck they will have balanced the Coumadin level out a bit better so we can avoid the blood bank for a few weeks. I'm getting to the point where I truly despise the hospital.

For now, I'm headed off to bed. Tomorrow will be my fourth day in a row with Mom, unusual in that I was supposed to have today off. I'm looking forward to spending time with my family on Thursday. They deserve it, and so do I.

Monday, July 28, 2008

Why Not Go For The Gold?

Mom, as befits her new personality, has thrown us yet another curve ball.

You must know that all throughout her life this woman dyed her hair once, and that was before I was born some fifty-odd years ago. She was accused of "putting a rainch on her hay-uhr" by my paternal grandfather just once. After he picked himself up from the neighboring field he never mentioned it again.

She has constantly made fun of Sis and me for making sure our roots stay under cover, never understanding why we'd want to change the "beautiful natural color" that our hair is.

Mom has apparently not SEEN the "beautiful natural color" of our hair for several years, or she'd know it's mostly white by now.

However.

As you can see from the photos to the right, Mom has always said no to the peroxide. No to Miss Clairol, no to L'Oreal, no to Henna, no to any and everything that might smack of anything other than the original color God gave her.

Until last Friday.

Last Friday she informed me in no uncertain terms that she was going to the beauty shop at the rehab center and she was going to have Sue, the girl there, color her hair a bright copper.

Yes, folks, welcome to the latest edition of My Mother The Floozie.

Her old hairdresser called Saturday to see how she's doing, and I had to drop the bomb on her.

"Uh, Helen? Ah...Mom's getting her hair dyed a copper color next Friday. I just thought you'd like to know."

A thud sounds as Helen's jaw drops to the ground.

"Helen?? Are you there? Are you OK???"

"YOU HAVE GOT TO BE KIDDING ME!!! SHE WOULD NEVER LET ME EVEN TALK ABOUT DYEING HER HAIR, AND I DID IT FOR OVER 30 YEARS!!!"

The crazy hits hard, folks, and the crazy hits deep. It now seems as though she has a "What the heck? I might as well try it. What can it hurt? Looks fun!" kind of attitude about things she can control, whether that's laying her head down in a plate of spaghetti because she's tired, announcing she has to go to the bathroom in the middle of a meal, or dyeing her hair. The next thing she wants to do is get one of those scooters with the racing stripes down the sides.

And what a sight THAT will be. I'm wondering if we should be getting her a matching helmet, or if we should just let those copper locks act as a beacon for anyone in her way.

I'll be sure to post photos after the dye job. It's something you won't want to miss!

Thursday, July 24, 2008

Makin' Momma Happy

Today Sis and I discussed the Mom Situation, and decided she needs more to do.

With her state of mind the way it is, she doesn't enjoy watching television. She doesn't read books, listen to music or converse with other residents unless they start up a conversation with her. Even then it's hard to tell what she'll say. All her therapy is done in the morning, and all she has to do for the rest of the day is sleep, eat, and think about anything that comes into her head, no matter how bizarre it may be. And sometimes it can be pretty dadgum bizarre.

Sis and I decided she needs some distraction, particularly in the afternoons when she has nothing to do.

Why waste all that valuable time? She has three hours, more or less, of therapy in the morning. Why not expand her therapy to include the afternoon as well? If she can't withstand the physical therapy, she can surely withstand the cognitive therapy, and it would give her something to do to occupy her mind.

I called her doctor today and he agreed it was a good idea. All I have to do now is mention it to the head nurse at the rehab center and get her to put the plan in motion.

We're hoping this will help Mom be happier while aiding her recovery.

Because everyone knows, if Momma ain't happy, ain't nobody happy.

Wednesday, July 23, 2008

Sometimes It's Just Too Much

Tonight The Boy and I went to the rehab center. It was not a good night.

As we walked in we saw Mom sitting in her wheelchair in the common area. She had been crying. And it only got worse from there.

She'd had some weird dreams about The Boy, Cutie, and one of the aides at the center, and everything was all mixed up in her mind. She was convinced The Boy had disowned her as his grandmother, and she wept openly because that hurt her so much. She thought the aide was the real father of Cutie, and even told him he was an adopted grandson-in-law.

Which is curious, because he'd have to be married to my daughter-in-law to be Cutie's father. But there is no reason in the stroke-damaged mind.

She spoke of the pork roast she'd put in the convection oven, and told me to be sure to check on it or it would overcook. She told me about a nurse she threatened to "cold cock" if the nurse didn't treat her with more respect. She remembered and then didn't remember and then did remember almost everything we talked about.

And then it all became too much for me.

I lost it. Bawled my eyes out right there in her room. And she couldn't understand why.

I couldn't help it. I just kept thinking that I wished she would just be MOM again for five minutes. Just five minutes. Just so I'd know she was still there; still Mom somewhere deep in that damaged brain of hers.

I want so much to believe there is still a chance she will be Mom again instead of this person she's become - this monotone, repetitive, narcissistic, hallucinogenic person she now is - but I honestly don't know if that's a possibility. The doctors have said her brain is still healing and it will take a long time, up to a year, for that to be complete. The carotid surgeries may or may not help. The surgeon and neurologist said they do help in about 50% of the cases.

Which means in 50% of the cases they do not.

What if she remains this way forever? Will she be able to live in an assisted living apartment by herself with a compromised mental capacity? It will be hard enough with a compromised physical capacity. How will she remember all the things she needs to remember in order to transfer herself from the bed to the wheelchair, from the wheelchair to the toilet, etc.? What about the terrible nightmares and awful dreams that she believes to be reality?

What kind of life is this for her?

OK, God. Once again I'm giving this to You. I can't do this by myself. She was Yours long before I came along, and she'll be Yours long after I'm gone. You have The Plan. You know how the story plays out and what is best for her. Your Will be done.

Amen.

Monday, July 21, 2008

There's More Than Enough Crazy To Go Around. Feel Free To Help Yourself.

Son and family came in to see Mom this weekend, and she loved every minute of it. They were able to visit both Saturday and Sunday before leaving town. During that time Cutie got plenty of quality time with her great-grandmother, and Mom couldn't have been happier.

Then today she promptly forgot about the whole visit and asked why Son and DIL and Cutie hadn't come to see her.

Then half an hour later she told me how much she loved having Cutie snuggle up to her in her bed to say goodbye before they left.

And then she went on to talk about the wonderful reception we'd had with the barbequed meat, beans and potato chips. She told me she thought it went so well even though there were about 100 people there. She was sorry she didn't get to eat with the rest of the family, but had to eat with the ladies at her table in the dining room. And why did the caterer send those sliced potatoes instead of the potato salad she ordered?

Uh, Mom? Brain fart.

"No it isn't. We had the party..."

No, Mom. Your birthday is next week. That's when we'll have the barbeque. I promise.

"But I ate two sandwiches..."

That was at dinner last night. The rehab center served barbeque sandwiches. That's why the potatoes weren't what you thought you ordered.

"I thought you said Son was coming in this weekend. He never did come to see me...."

Sigh.

Saturday, July 19, 2008

In Which I Take The Day Off

Son and his family were in town today, so I took the day off.

I did not go to the rehab center. I went out for coffee in the morning and ended up sleeping most of the rest of the day due to a migraine, but it was all good. I needed the day. Truly I did.

Since Mom is back at rehab, Sis and I are trading off days again. She was there this morning, Son was there this afternoon, and I'll be there with Son and family tomorrow. Hopefully it will all be good.

For now, I'm continuing the rest of the rest.

Friday, July 18, 2008

Reining Her In

Mom was discharged from the hospital today.

Sis and I met with her doctor at zero-dawn-thirty and had quite a talk with him about everything you can imagine. I don't think I've mentioned before that her doctor is an old high school friend of mine and a deacon in Sis' church, so we're well acquainted. We think a lot of him personally, his ability, and his commitment to God. He spent a good amount of time with us and answered all of the questions we put to him to our satisfaction.

Even after we threatened to smack him for making us get up so early.

They are not going to do the camera swallow. From what we can gather, it is likely there was a weak place in the wall of Mom's colon or small intestine that bled out when her blood became too thin, and that was why her hemoglobin went so low. When the blood thickened back up to where it should have been, the weak spot probably healed over, which may be why it couldn't be found.

Or not.

At any rate, she's not bleeding now.

The vascular surgeon was also in today before Mom was discharged. Let me tell you how blessed we are. During our talk with him we brought up the fact that Mom was afraid the carotid surgery would bring on another stroke. He assured her that the risk of stroke was less than 1%, and she would have a much higher chance of having another stroke if she didn't have the surgery. Ultimately though, he said it was in God's hands. He was just an instrument for God to work through.

Oh yeah. That's the kind of doctor we LIKE.

After she was discharged we took Mom back in her car to the rehab center, but took our time getting there. We stopped for a chocolate shake and took the scenic route, and I think she enjoyed the ride. She's back in the same room in the same bed she was before in the same rehab center, so we hope she'll be less confused. She took to the same wheelchair she had before like it was an old horse she'd ridden for years.

They will be doing daily blood tests on Mom now to be sure her levels stay where they should. Hopefully we won't have to go through this again for a very long time.

Sis and I did notice how much we've been babying her lately. We plan to use a little more "tough love" in order to get her to be more self-reliant. The more she does for herself, the better. We want her as "on her own" as she can get as soon as she can get there!

We left the rehab center before dinner, and I spent the evening with my family - something I haven't been able to do in over a week. Every night at the hospital is wearing, both physically and emotionally.

It's time to let go a bit. Son, DIL and Cutie are coming in to town tomorrow to see her, so I may just let them take the reins for the day.

There are more than enough reins to go around.

Thursday, July 17, 2008

Frankly, My Dear, She WILL Swallow A Cam

Praise God from Whom all blessings flow....

They were FINALLY able to do the full small bowel test on Mom today. The results were completely normal. No ulcers, no perforations. We are both blessed and perplexed at the same time. On the one hand, we're so very happy nothing was found, and on the other hand, we wish they would have found some reason why Mom's hemoglobin varies from 10.5 to 11.5 and why she has blood in her stool.

Mom has threatened bodily harm to the next person to come within ten yards of her with anything resembling laxative, and I do believe she could do some major damage.

Tomorrow we're hoping they will do the test where Mom swallows a camera the size of a capsule that will record 8 hours of photos of her insides, one every 30 seconds. That should give them a better idea of what is truly going on and if there is still a cause for concern.

In the meantime, there are rumors of discharge in the air. Sis and I will be meeting with Mom's doctor tomorrow morning at the crack of dawn to discuss things. Ideally, we'd like for her to go to the rehab unit at the hospital and stay there until her surgery on the 30th, but that all depends on what the doctor thinks. We'll cross that bridge tomorrow.

Because, after all, tomorrow is another day.

Wednesday, July 16, 2008

Same Song, Third Verse

It didn't happen again today.

The stupid barium has decided to take up semi-permanent residence inside Mom, so she was unable to have the test again.

Another day of waiting.

Another day of laxatives.

Another day of a bottom which has become similar to raw meat from All The Pooping.

I feel so sorry for her. And felt so sorry for her even as I gave her a drink of laxative alternated with a drink of Pepsi until the whole bottle was gone.

So tomorrow we'll try again.

On a more positive note, I'll share this; I bought a footlong Subway sandwich for $5.00 yesterday and ate half of it on the way to the hospital. I stored the other half in the refrigerator on Mom's floor so I could have it for lunch today when I got off work. I've been skipping lunch at work to leave early for the hospital.

Today when I got to the hospital I stopped at the fridge and picked up my sandwich before going to Mom's room. She'd had lunch a couple of hours before I got there. Usually she's so "stuffed" she doesn't want her dinner, but tonight must have been different. I unwrapped the sandwich and took a bite, then saw the longing in her eyes. I asked her if she wanted a bite, and she took it from me. We traded off for a couple of bites, but then she decided I'd had enough and she ate the rest of the whole thing!

Note to self: EVERYONE gets tired of hospital food. Bring Mom take-out!

Tuesday, July 15, 2008

An Update From The Past Few Days

Let's see, where were we?

Ah yes, the colonoscopy.

It went well. They did it on Sunday, something they don't do unless it's almost a dire situation. Since they didn't find anything, a small bowel barium test was scheduled for Monday, to be followed by Mom swallowing a tiny camera which would take photos of her insides every 30 seconds until it was eliminated.

I spent the night with her Sunday night, and Monday morning they came to get her for the test. They had me wait in her room. About an hour later she was back, which confused me since I'd been told the test would take up to eight hours to complete. It was then I found out they had done the wrong test. Instead of the barium swallow on the full small bowel with the camera, they did a "modified" barium swallow only. They were able to reschedule the full test, but when they came to pick her up for it, her blood pressure was 200/80 - much too high for her to be moved. She was given medication to lower the pressure and it did work, but too late for the test. It was rescheduled for today.

Bright and early today she went to have the test done. Since I had to work and couldn't be there, I called around 11 a.m. to see how things were going. Her nurse answered and told me she was already back in her room because they were unable to do the test today. When I asked why, he said it was because of the barium that was now in her colon that was left over from the botched test yesterday.

I was some kind of angry.

So that meant more laxatives for this poor woman who has done nothing but poop for the past almost four days. And tomorrow morning there may be more than that, if they feel all the barium is not gone.

All this to find out where she is bleeding from so they can do surgery and cause more pain, which will hopefully end up with her being healthier while driving us crazier.

The good news is that the fluid which was found on her lungs that caused her to have breathing problems is almost all gone. She is no longer on oxygen.

Well, not that she really was anyway since she kept taking it off, but you get the idea.

Tonight Mom was more lucid than she's been in a while. That is, except for telling me that she knows I've been sleeping with one of the doctors who takes care of her because she saw us when I spent the night Sunday night.

Because, you know, I make a habit of having illicit encounters of that sort in front of my mother and all.

You just gotta laugh.

Saturday, July 12, 2008

And The Hits Just Keep Rolling In

When last we left the story, Mom had been given two units of blood and two of plasma. That turned into four units of blood and two of plasma before they were able to get her hemoglobin back up to an acceptable 11.5 instead of the 4 she came in with. Earlier today it dropped to 10, but went back up to 10.5 later on.

The doctor ordered a colonoscopy. In order to accomplish that, Mom had to drink a full gallon of a foul concoction called "Go Lightly" which was supposed to make her "go" - but not necessarily lightly. She had to drink a full 8 ounces every 15 minutes until it was gone. She went at it full tilt for the first half-gallon, but after that she was done.

Finished.

Kaput.

She refused any more, regardless of pleading, threats, guilt trips or whining. So the nurses took a different route and gave her a more concentrated form. She only had to drink two 10-oz bottles of this stuff, one hour apart. She got about half of the first bottle down and refused the rest. So this morning they gave her the super super concentrated stuff. She downed it like a good girl, followed it with the water she was supposed to have, and we waited.

Unfortunately, it was too late to have to colonoscopy done today. So she has to go through the same procedure again tomorrow morning in hopes of being able to get this over with tomorrow. Each minute she's off of the blood thinner is a risk for another stroke or heart attack, so we need to get this procedure done soon.

In addition, last night she began having some problems breathing. She was supposed to wear oxygen, but every time the nurses or I would check on her she'd taken it off. Finally, around 3 a.m., I lost patience with her and asked her why she was trying so hard to die when everyone around her was working so hard to keep her alive. She finally put the oxygen back on and left it alone.

Later in the morning the respiratory therapist came in to check her oxygen levels and cut her down to one liter of oxygen. Still later she came back and removed it completely. Five minutes later Mom complained of being unable to breathe. I hit the call button and rushed out to the nurses' desk to get someone to help. They were able to get her back on oxygen and breathing well right away.

But it scared me. What if one of us hadn't been there? She wasn't clear enough to hit the button to call the nurse. She didn't even tell me anything was wrong until I asked.

Sis is with her tonight while I try to get some rest. I'll be there early tomorrow morning to take over so Sis can go home and rest before the colonoscopy. Please pray this part is over quickly, Mom heals quickly, and we can move on to the next challenge.

Because if we've learned anything through this, it's that we know there will be more challenges to come.

Thursday, July 10, 2008

Just When We Thought We Were Making Some Headway, The Second Shoe Drops

Around 12:30 p.m. today I got a phone call from the rehab center. They were taking Mom by ambulance to the hospital.

Her hemoglobin, which was low to begin with, had dropped to a dangerous level. Normal hemoglobin is around 11 to 14. Mom's was 4.

Due to the medication she is on her clotting factor was also wacky. It should be around 1, but hers was around 10. That meant her blood was extremely thin. Way too thin.

I called Sis and met her at the hospital. Mom soon joined us, and we began the long journey of the day. Nurses had trouble drawing any blood because of the problems Mom was having. The lab techs had to be called in to find a vein that would actually produce enough blood for tests. IVs were started for blood, plasma, and other fluids. Mom was given vitamin K to help her blood's ability to clot. Two units each of blood and plasma were hung.

Mom pinked up a bit from the sheet-white she'd been when she came in.

She was admitted to the hospital and put into a room. Clear liquids only, some of her medicines were stopped. She started having muscle spasms in her back and shoulders, then her legs and feet. The nurse gave her two Vicodin to ease the pain.

Sis and I thought we'd be safe to steal away and grab something to eat around 9:30 p.m., so we told Mom we'd be right back. We thought she'd be out like a light by the time we got back. Instead, as we rounded the corner to her room, we found her writhing in pain, almost halfway out of her bed! Three of the four side rails were up on the bed, but she'd managed to work herself almost out of bed on the fourth rail. Her back was cramping so badly that she was crying out in pain, but she was unable to find the call button for the nurse. If we'd been any later coming back from the cafeteria she would've been on the floor.

We found out that each nurse has five patients tonight when they usually only have three. The hospital is short of help, and they are making due with the nurses they have. That's the reason Sis decided to spend the night at the hospital tonight.

Tomorrow morning I'll be there to see the doctor, an old high school friend, to see what he has to say about Mom's condition and treatment plan. We're hoping she can be treated and get well quickly, because the days following a stroke are precious in the sight of rehab. We don't want to lose any possible gain.

If you get a moment, please pray that the doctors will be able to find the source of Mom's bleeding and stop it, and that her medication can be regulated with no further problems.

And we'll hope this is the last shoe to drop for a while.

Wednesday, July 9, 2008

What Alien Being Has Overtaken My Mother's Mind?

Stubborn never dies. That's a given.

But in the brain-injured world, other things do.

Someone who was extremely modest, had a high tolerance for pain, never complained, never wanted any type of medication for anything, stayed up until the wee hours of the morning, never napped, and was never afraid of hard work can turn into the exact opposite of all those things in the blink of an eye. Mom was that person before, and is that opposite now.

Tonight I arrived at the rehab center right at dinner time. I came as soon as I could after work, but thought I'd wait to see how she did with dinner before I announced my arrival. Unfortunately, she saw me walk in the door so the jig was up. What followed could only be described as a tantrum.

They were serving spaghetti with meat sauce tonight with a side of spinach. Mom doesn't like spaghetti and refused to eat it or anything else offered. She also refused to even try the spinach. When I tried to get her to eat, she laid her head on the table and kept it there. I got one bite down her before she started complaining about her legs hurting and asking if I'd take her back to her room. When I refused, telling her she had to eat more before that would happen, she tried to lay her head back on the table again, this time in her spaghetti. We went back and forth like this several times. I ended up moving the plate and letting her lay her head on the table.

It was a struggle. Finally I gave in and we went back to her room. As soon as I got her back into bed her legs miraculously stopped hurting, her disposition improved, and she wanted ice cream. CHOCOLATE ice cream.

She reminded me of the typical two-year-old. And my patience ran a bit thin, I'll admit.

I know she's had a stroke. I know she's not herself either physically or mentally. But I also know she's playing games here, and I don't know what to do to about it.

Advice is always appreciated, as are prayers. Both for Mom as well as for Sis and me as we deal with the day-to-day realities of this.

Sometimes it just ain't fun.

Tuesday, July 8, 2008

The Hand Of God Is Showing ALL OVER This

A little over a week ago I went shopping for a place for Mom to live after she completed rehab. I looked at several different types of places, from nursing homes to retirement apartments. Not knowing how much function she would eventually have or when she'd have it however, it was hard to know just what to look for. I think I needed to get an idea of what was out there more than anything else.

One of the places I went to didn't particularly impress me the first time. It was an assisted living apartment complex situated next to the nursing home where my grandmother died. Unfortunately, it also has the same name as the nursing home did way back then, which lent nothing to the allure. However, the ownership of both it and the nursing home has changed hands since Grandma passed away. Both now have separate owners. While the nursing home still holds a poor reputation, the apartment complex does not.

Sis and I had all but decided on a different retirement complex for Mom; one that had three gourmet meals a day, a kitchenette in the studio apartment, furnishings in the lobby areas straight out of some kind of magazine. It was upscale all the way. The only thing it lacked was practical nursing care. The "assisted" part of assisted living, so to speak. We'd have to pay extra for that. That wasn't so bad, but the fact that it is at least fifteen minutes away from us and thirty minutes away from Sis is bad.

Very bad indeed.

The more I thought about it, the more I thought it was too far away. We're having a hard enough time getting the grandkids to come and see Mom as far away as she is now, and she'd be even further away at this place. I didn't know what Sis was thinking, but I decided to go see the first place again just to make sure of my impressions. I hadn't had a real tour the first time, so I asked for one this time.

What I saw really opened my eyes. Yes, the hallways were a little dark, but they were dark in the ritzy place as well. Yes, the walls were painted a putrid color in the hallways, but each floor was a distinct color so that residents could tell if they were on the right floor. All the floors at the ritzy place were the same.

But what really impressed me was the apartment itself.

These apartments have been around for a while, so as each resident moves out the apartment is completely redone. Fresh paint, new carpeting, etc. When I was there before I saw only the studio apartment. It was little more than a very large bedroom with a bath. This time I saw a one-bedroom apartment, and I knew I'd found Mom's new home.

It doesn't have a kitchenette, but it does have a closet area that can hold a small refrigerator, coffee maker, toaster, microwave, etc. Frankly, with Mom's mental capacity at this time, she doesn't need to be cooking. Of course, we hope that will improve with the carotid surgery and time.

There's additional closet space, a fairly large living room that will hold most of her furniture, a fairly large bedroom, and a full bath with a handicapped-accessible shower. She'll be on a floor that is accessible to an outside exit for fire escape, so there will be no stairs to negotiate.

Round-the-clock nursing care is available, as is assistance with bathing, dressing, and anything else she needs. Medications are given out with meals, so if a resident doesn't show up for a meal they are checked up on immediately. During the night checks are done hourly.

There's a beauty shop in-house, a soda shop (free), an activity room, trips to Wal-Mart, bingo, manicures, exercise, and all other manner of activities, including church services and Bible studies.

But the best thing of all?

She will be less than 5 minutes from my house.

And when I told Sis about all of this she told me she'd already been thinking about it, she agreed with everything I said, she trusted my judgment implicitly, and she thought Mom should go there to live when she's done with rehab.

Now tell me God didn't have anything to do with that!

All we have to do now is get this woman through rehab and the surgeries, and we'll be cookin' with gas!

Monday, July 7, 2008

The Report Card

First of all, I am pleased to report we now have the Power of Attorney as well as the Power of Attorney for Health Care signed, sealed and delivered. The latter includes Mom's Living Will. In addition, we have a Beneficiary Deed to the house. The Will will be completed and signed tomorrow, meaning all of our legal ducks will be in a row.

We'll be able to legally handle all of Mom's financial affairs, including selling her house if we absolutely have to. If she should become incapacitated we can now make decisions regarding her health care. When she passes away forty years from now, there will be no question about the ownership of the house. And when the will is signed, the courts won't get anything.

After tomorrow I think I'll be heaving a BIG sigh of relief about all of that.

We had our first Family Council meeting with the new rehab center today. There were five of them and two of us until Mom got there.

Yes, MOM was a part of the Family Council about her own care.

And yea, verily, we were impressed.

All of the problems we had regarding her being neglected have been resolved. The nurse that has been on duty couldn't have been friendlier or more caring. When I asked him questions about her upcoming carotid surgery, he even made the effort to come back to her room with a nursing textbook to let me read more about it. Mom has been placed on a 30-minute check since she has problems finding the call button, which has been replaced with a larger call pad that is easier for her to find. Nurses are being proactive about her pain meds rather than waiting until her pain is out of control to give them to her. She's known as "Little Momma" to the aides on the floor, and she's named one of the aides "King Kong" because he's so big and strong.

During the Family Council it was brought up that Mom doesn't like to go to the dining room anymore to eat. When she was asked why, she said it was because she was afraid she would be left there again and not be able to get back to her room. The head of nursing promised her it would never happen again, and apologized to her for the one time it did happen - the day I found her there.

The head of the therapy department reported to us that Mom seems to be making improvements. Her left-side neglect is lessening. She's looking more toward her left side and noticing her left leg more. She has been spending time standing with a walker and in a stander, trying to regain strength and balance. She is improving in both. Occupational therapy is working with her to make sure she can eat by herself, as she tends to ignore a great deal of her plate due to her limited field of vision with the left-side neglect. She's improving there as well. Speech therapy is working with cognitive abilities, and again, she seems to be doing just fine.

You could have knocked me over with a feather.

If you'd asked me this weekend, I would have told you she was depressed, unable to stay awake, didn't want to eat, and refusing to cooperate. Guess she fooled me, huh? And I can't tell you how glad I was to be fooled!

I asked her what the difference was between this place and the hospital therapy. Her answer was that at the hospital you were always doing things the wrong way. At this rehab center you were praised and encouraged for what you did right.

I guess she can still teach me a thing or five.

Sunday, July 6, 2008

The Hex, The Will, And The Earlobe

Sometimes you just have to laugh.

I emailed Sis last night, reiterating the importance of getting Mom's Power of Attorney for medical matters as well as one for her legal matters, her will, and her quit claim deed for the house so that we'd be prepared legally for any consequences that should take place. I'd mentioned it before, but Sis either forgot about it, was too busy to do anything about it, or was trying to ignore it.

Today I found out it was the third choice.

I spoke with her in person when she came in to bring Mom's laundry, telling her I had spoken with Mom's attorney about the documents in question and he agreed it was imperative we get them in order as soon as possible. I mentioned that this was legal stuff, not emotional stuff, and it had to be handled. I told her it couldn't be ignored. But sometimes the little kid in us takes over, and that's what Sis admitted to today.

She told me she had successfully avoided dealing with it so far, and she was comfortable ignoring it for the foreseeable future. I so related to that, but I also saw the practical side. We have to have these things taken care of because Mom could have another stroke at any time and become incapacitated. We need to have access to her funds to pay for her care, to her decision-making should she become unable to do so, and, God forbid, in the event of her death, her final wishes. We don't intend to utilize any of this until we absolutely have to, but we need to have it available when we do need it. Mom can make her own decisions up until the time she is unable to do so anymore.

Sis finally agreed to have the lawyer meet with Mom, but said she felt as though she was jinxing everything by doing the paperwork. As if by finalizing the legalities, she was signing Mom's death warrant. Even though we both know that's ridiculous, it does make things seem more final in a way, and neither of us likes it one bit. I think we'd both rather we never had to deal with anything like this.

Doesn't everyone in this position?

Meanwhile, back at the ranch, Mom had a few visitors today. One of the deacons from the church came and brought her communion. After taking it she promptly pronounced the wafer stale.

Did I mention she has become a bit more blunt since the stroke?

Her great-niece and family came to visit from Texas, as did a close friend and her husband from church. Unfortunately, she was asleep by the time the last friend arrived.

I am concerned that she does not seem to be eating as she should. In addition, she does not seem to have any energy or desire to work toward getting better. I worry about what the therapists are going to say in our family conference tomorrow. If she doesn't continue to show improvement, Medicare won't pay for her rehab care. I worry about her upcoming surgery to unblock her right carotid. Will it clear her mind at all, or will it make things worse due to the effects of the anesthetic?

I have to continually give this to God, admitting I am powerless over even the least detail. And yet it seems as often as I give it to Him, I end up taking it back to worry about once again. I know there is a lesson for all of us to learn in this, and my prayer is that we would learn quickly...that we would not have to be yanked up by the ears in order for God to get our attention.

Because these kinds of lessons aren't the least bit fun.

Saturday, July 5, 2008

Gasket Repair - We'll See How It Holds

Last night at 10 p.m. the Head of All Nurses came to work.

At 10:01 she received a telephone call from me.

I explained our concerns with Mom's care from the time she entered the facility up to today. For the first time since I started complaining, someone in authority listened. Someone in authority apologized. Someone in authority acted as if they actually cared what happened.

And someone in authority promised to rectify all of my concerns.

I don't ever want to have another day like yesterday. I don't ever want to feel as helpless and without control as I did then. I don't ever want Mom to have to suffer because of neglect.

The thing that most broke my heart yesterday was when she said, "I know I was a bad person before and this is my punishment."

NO ONE should EVER have to feel that way. NO ONE.

EVER.

And Sis and I will do everything we can to make sure Mom never has to feel that way again.

Today is hard. Today is the first day I won't see her since that night she called us for help. But Sis and I have agreed to trade off days for our own mental health, and it's something I need to get used to. It was hard for her yesterday, so I know it will be hard for me today. But we both have family that needs us as well as having Mom. We have to balance out things so that neither is neglected.

And the balance may end up being very delicate indeed.

Friday, July 4, 2008

In Which I Go Off With A Bang

It was not a good day at the rehab center.

Oh, the therapy sessions went well in the morning, according to Mom. That was good. And lunch was OK. I brought her some creamed peas and new potatoes from her garden along with fresh green beans cooked with onion and ham. Unfortunately, I didn't cook the green beans long enough and she let me know about it.

What can I say? She's the cook in the family, not me.

After lunch I took her to her room and noticed the quilt I'd brought in the night before was missing. When I asked about it, I was told it got wet and was in the soiled clothing bin. I asked Mom how it had gotten wet, and she told me this story...

It seems as though she was in a lot of pain. Her hip has been bothering her after therapy quite a bit, as well as her shoulders. Her tailbone gets sore from sitting in the wheelchair as well. Early this morning she needed some pain medication and pressed what she thought was the call button. Now, whether or not she actually got the call button is up for grabs, because she has a hard time telling where it is and how to use it half the time.

She told me she waited what seemed like forever, and when it became evident no one was going to come and help her, she decided to take matters into her own hands. She kicked the tray table next to her bed with her right foot, sending her water pitcher and everything else on it flying. Apparently it made enough noise to get someone in there. She asked that person for pain meds, but never got them.

After lunch she did.

I stayed with her until she dozed off for a nap, then went to do my part-time job. I called the rehab center to ask if they would check on her every half-hour or so to be sure she was OK, especially after the pain medication episode. What I got on the other end of the phone was a defensive, snotty nurse who told me there were 36 patients in the unit, and they didn't have time to check on Mom that often. They told me they'd check on her every two hours.

I was pissed.

I wasn't going to go back to the rehab center tonight, but I had this feeling that I needed to after the evening meal. Mom was supposed to have gotten her hair done, and I wanted to make sure it was completed and that she was settled in for the night. I walked in and went straight to her room, but she wasn't there.

She was sitting in the dining room. She'd been left there, along with another lady, and forgotten.

When I asked the person who was cleaning up the dishes where the aides were, she told me they weren't supposed to leave patients alone and she didn't know where they were. Mom said she'd been asking everyone that passed by to help her get back to her room, but no one would listen to her or help her.

I took hold of her wheelchair and went directly to the nurses desk, where the nurse and CNA sat gabbing. I told the nurse I was not happy and why. She got very defensive and uppity with me, and I just reiterated my unhappiness at the way Mom was being treated. I told her Mom needed pain medicine for her tailbone since she'd been sitting so long, and I'd like to have an aide meet me in Mom's room to help me get her into bed. She said she'd send one back.

Forty-five minutes later, when I'd done all I could do by myself to get Mom ready for bed and she'd had her medicine, I went out to the common area to find the aides eating ice cream with the other residents. The nurse was gone. No one had mentioned to the aides that we needed any help.

I blew a gasket.

I had the supervisor on duty call the nursing manager, and I gave her an ear full. This after forty-five minutes of apologizing to Mom and crying because I didn't know what to do to make it right for her.

She deserves so much better than this.

And I feel so helpless.

On a positive note, one of the aides promised me she'd put Mom on a 30-minute watch until 11 p.m. That way, if she wakes up and is in pain before then, she can get medication. That made me feel a bit better.

But as for the other nurse? I'm out for blood.

Thursday, July 3, 2008

The Fireworks Don't Start Before Seven

Today was Sis' day with Mom, but I made a short trip up there to deliver laundry and a clock for her room. She's been asking why they took the clock away, but doesn't realize the clock was in her room at the hospital, not her room at the rehab facility.

Mom wants to go see the fireworks tomorrow night, but she tires out so easily that she's in her nightgown and in bed most nights by 7 p.m. Tonight she could barely keep her eyes open long enough to tell us goodbye. In years past we've always made a quart of homemade banana ice cream and taken it, along with her and my mother-in-law, out to watch the fireworks. It just won't be the same this year.

The kids and my husband are going to our older daughter's house in the country so my youngest son can set off fireworks. He lives for the Fourth of July every year, and has purchased immense amounts of fireworks to blow up. I told my husband that I'd really like for them to go and have a good time, but I'd just like to veg out at home after taking Mom some ice cream. I don't feel like socializing. Frankly, I'm exhausted from the past weeks, and I need some quiet time alone to relax and renew.

Mom was moved to her bed by the window today since her roommate was discharged. She ate in the dining room with the other patients, and went to therapy for the first time. She couldn't tell me much about therapy except that she sat on a mat. Sis told me that before she got there and before they figured out Mom needed assistance to eat, she was placed at a table with another lady who was as bad off as she is. The other lady tried to help Mom eat, and ended up spearing her in the ear with a fork.

I don't think we'll have a problem with getting assistance at mealtime again.

For the most part we're very pleased with this rehab center. The aides seem to be genuinely caring people who want the best for the people who are there.

And I hope it continues this way.

Wednesday, July 2, 2008

And A Tough Day Was Had By All

We were supposed to be at the new rehab place by 10 a.m.

We'd planned to take Mom for a drive before getting there, being as she's spent so much time in the hospital lately. We thought she'd enjoy it.

We got to the hospital in plenty of time. The hospital knew we were coming, and knew what time we were supposed to be at the new place. And still they kept us there until after 10:30 a.m. waiting on paperwork.

By that time Mom was so tired that all she wanted to do was get into her new bed, wherever it was. We drove almost straight to the rehab center and got her settled. Then we signed forty million pieces of paper and waited for copies to be made.

Sis thought she was actually going to get back to work today, but I took the day off. Finally, in mid-afternoon, we left. I took Sis home, then went to an appointment I had. I checked back in with Mom to take her to her first dining room dinner. The food was certainly not spectacular, but at least she had the opportunity to socialize. After dinner was over and she was back in bed I left for the night.

It was hard leaving her there. I'm praying she doesn't get too disoriented, that she makes friends easily, and that she blows away the therapists with her progress. Most of all, I pray she becomes all she can while she's there.

Only time will tell.

Tuesday, July 1, 2008

The Day Was Better, As Was The Mood

The mood was much improved today when I got to the room after work. It might have been because Mom was asleep after her grueling day of therapy. :)

We had a good talk, she and I. Her mind seems much more clear when there is only one person for her to deal with. We spoke about her new rehab center and she told me she was impressed with it when her friends were there for various recoveries after their illnesses, so she had no qualms about going there. That took a load off of my mind.

She is concerned about finances, but has no need to be at this point. Medicare and her tie-in plan will handle all of her rehab cost for the first 100 days, and we're hopeful she will show much improvement during that time. We'll deal with extended rehab should the need arise at a later date.

We also discussed assisted care apartments, condos, live-in help, and retirement community living among other things. She needs to be a decision maker in her future, so it's only fair we discuss these things with her. And it was particularly good to do so today because she was so lucid.

At least until dinner came and she asked why she was having mashed potatoes for breakfast.

Tomorrow the doctor has OK'd us to drive her to the rehab center. We are supposed to have her there by 10 a.m. We plan to drive around for a while, taking our time getting there. The only risk to her is the fact that she is still a bit unsteady sitting up straight and tends to lean to the left. If one of us drives while the other sits in the back seat with her, we can keep her propped up just fine.

The one problem is that she will want to go by the house. She's already told me she wants to go inside, but there's no way Sis and I can hoist her out of the car and into the house, much less out of the house and back into the car, so she'll have to be content with a drive-by. The Boy has not been by to mow the grass this week since he's been working at the church fireworks stand, so it looks a little shaggy. I'm sure she'll have something to say about that.

We told her today about the new visiting arrangements Sis and I had come up with. She agreed it was too far for both of us to drive every day, and thought the every-other-day except Friday sounded good. We told her we'd keep that up until we thought she was settled and making friends, then maybe drop to one day a week and one day a weekend so we could have some time for our families as well. Again, she agreed that was the thing to do.

So why do I feel so guilty?

I finally have underwear in the wash, along with other items of clothing. Hopefully I'll get up in time to shower before leaving for the hospital.

First impressions are everything, you know.

If you happen to think about it, prayer would be appreciated for Mom as she tries to settle into her new surroundings - the fifth move she's made in less than three weeks. Also for her to thrive in therapy and to make new friends easily.

And with that, I'm going to bed.